bone marrow transplant

Dayglo Eyes and a Uniform Surprise

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I had yellow florescent DayGlo-looking crap leaking out of my eyes all day long. I looked like some jaundiced mutant. In fact, couple my yellow jaundiced-looking eyes with my big ol’ pumpkin head and I looked like I could have starred in one of Maurice Sendak’s books.

Lung GVHD by Any Other Name

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As I’ve tweeted in the past, I’ve contracted both acute and chronic Lung Graft Versus Host Disease as a result of my April 2010, Bone Marrow Transplant. For clarity’s sake, or perhaps to confuse things even more, I think it is important to be more specific in naming my lung disease. In my lab reports … Read more

After the Transplant

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Thinking back, the amount and potency of the chemotherapy that I received during phase one and phase two of my treatment were a pittance compared to what I received for my bone marrow transplant. During the first two phases I thought to myself, ha, this chemo stuff ain’t living up to all the hype. Sure, … Read more

Feeling Pretty Darn Good!

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It seems the better I feel the harder it is to keep folks updated on how I’m doing. Now that I am feeling better I have more options to do other things other than to sit and think about how bad I feel. Now, mostly I sit around and read and write and take walks … Read more

My Donor and Me

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So, in a little over a month I am scheduled to have my bone marrow transplanted. It sounds daunting but according to my nurse practitioner it will be rather anti-climactic. Apparently, I will receive the bone marrow harvested from my donor in the same manner I would receive a blood transfusion: hang the bags, hook … Read more

Bone Marrow Transplant Schedule

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Wednesday 2/24/10 @7:30am-Registration on the 1st floor of the Weinberg Building a. Diagnostic lab studies. b. @8:30am-Bone marrow aspirate and biopsy. Located on the 2nd floor of Weinberg in the infusion area. c. Meet with R.N. at 9:30am. Located on the 2nd floor of the Weinberg Building. d. Ct scans of the chest and sinus … Read more

The Registry Works!

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My wife ran into my doctor this morning while walking about the hospital. After exchanging pleasantries and having a discussion about setting up an appointment for me to meet the new head doctor of oncology, my wife asked my doctor what he thought about the possibilities of the match for my bone marrow transplant. The … Read more

Donor Update – 1/20/10

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Email excerpt from my Bone Marrow Donor Coordinator: When dealing with national and international registries it takes a long time compared to family members who arrive ASAP. World Wide I only found 8 potential matches; of samples we requested we only received 2 of them this week; they are in typing now. I do not … Read more