Adrift of Course

a boat far a’sea
adrift as tho’ waywardly
of course tho’ it be

 

 

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Life Is

image

it’s funny, life is
we are so busy living
we forget to live

 


Let’s Send The Year Out In Poetic Style
See Newsletter Love (007-15) for details
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HOW NOT TO DIE: In 13 Easy Steps

On this day five years ago, I received the news that a recent lung biopsy showed that my lungs were inflicted with a severe form of graft versus host disease (GVHD) called bronchiolitis obliterans syndrome (BOS). BOS, I came to find out, was a known but uncommon side-effect resulting from a bone marrow transplant (for leukemia) that I had had earlier in the year. And by severe I was told it meant the BOS was incurable, non-reversible, and, in most cases, aggressively fatal. I was also told — because I had asked and insisted on an answer — that, according to a National Institutes of Health (NIH) study of the time, BOS had only a 13%, five-year survival rate. In other words, there was an 87% chance that within five years I would be dead.

Well, it’s been five years and here I am – a newly minted Thirteen Percenter.

Can a brother get a “Hell yeah?”

Hell yeah!

Anyway… at my most recent appointment with my oncologist, in addition to his standard declaration whenever he sees me of, “So, I see you’re still alive,” he also declared that my present condition may just be a miracle of sorts because it appears that my incurable BOS may have actually been cured… somehow.

I don’t think I would be overstating if I said that, because of all my goings on these past five years – goings on such as leukemia, GVHD (and not just of the lungs, but also of the eyes, liver, and intestines), prednisone side-effects, cytomegalovirus (CMV), and heart failure to name a few – I think I’ve learned a thing or two about life in general and living it in particular.

Now, if you search around this site, I’m pretty sure you will find that much of my writing, mostly encapsulated in my haiku, reflects a lot of the insights and learning I’ve garnered from these goings on. However, just because I like you all so much and don’t want you to have try to sift through this site for days on end in an effort to discover these insights and learning, and because short, pithy lists are all the rage these days, I will identify for you the top thirteen things I learned about how to not only not die, but mostly about how to best live your life filled with happiness and meaning, regardless whether death is looking you directly in the face or not.

Cool?

Okay, so here we go…

Continue reading “HOW NOT TO DIE: In 13 Easy Steps”

Tangled

Tangled
 

blossoms and decay
from rose to a tangled rot
such is this, our lot

#boo

 
 

Of That Which Is

The That Of God

Where does It come from
The Matter of Science
The That of God

We think we know
We believe we know

But we’re wrong
And we’re right

You think
I don’t

I believe
You won’t

The Matter
The That

Forever trapped We are –
within our thoughts
within our beliefs
within an
eternally
transcendent
irreconcilable
bliss

 
 

Fenc’d no.7

Fenc'd no.7

Tho’ bound by boundaries bound by boundaries
‘Tis the warden found within
That keeps us from our freedom
Release the cage key to the wind