Cancer isn't pink

HOW NOT TO DIE: In 13 Easy Steps

On this day five years ago, I received the news that a recent lung biopsy showed that my lungs were inflicted with a severe form of graft versus host disease (GVHD) called bronchiolitis obliterans syndrome (BOS). BOS, I came to find out, was a known but uncommon side-effect resulting from a bone marrow transplant (for leukemia) that I had had earlier in the year. And by severe I was told it meant the BOS was incurable, non-reversible, and, in most cases, aggressively fatal. I was also told — because I had asked and insisted on an answer — that, according to a National Institutes of Health (NIH) study of the time, BOS had only a 13%, five-year survival rate. In other words, there was an 87% chance that within five years I would be dead.

Well, it’s been five years and here I am – a newly minted Thirteen Percenter.

Can a brother get a “Hell yeah?”

Hell yeah!

Anyway… at my most recent appointment with my oncologist, in addition to his standard declaration whenever he sees me of, “So, I see you’re still alive,” he also declared that my present condition may just be a miracle of sorts because it appears that my incurable BOS may have actually been cured… somehow.

I don’t think I would be overstating if I said that, because of all my goings on these past five years – goings on such as leukemia, GVHD (and not just of the lungs, but also of the eyes, liver, and intestines), prednisone side-effects, cytomegalovirus (CMV), and heart failure to name a few – I think I’ve learned a thing or two about life in general and living it in particular.

Now, if you search around this site, I’m pretty sure you will find that much of my writing, mostly encapsulated in my haiku, reflects a lot of the insights and learning I’ve garnered from these goings on. However, just because I like you all so much and don’t want you to have try to sift through this site for days on end in an effort to discover these insights and learning, and because short, pithy lists are all the rage these days, I will identify for you the top thirteen things I learned about how to not only not die, but mostly about how to best live your life filled with happiness and meaning, regardless whether death is looking you directly in the face or not.

Cool?

Okay, so here we go…

Continue reading “HOW NOT TO DIE: In 13 Easy Steps”

BOUND TO LEAVE: A Relating to Humans Poetry Feature by Gordon (RoughTradeEditor)

Bound to Leave What a beautiful sunset, I thought. I used to hate people who enjoyed shit like this, but I didn’t realize there is beauty in distance and hope in somewhere else.   roughtradeblog.wordpress.com   You can share your experiences Relating to Humans by visiting here.     Continue reading BOUND TO LEAVE: A Relating to Humans Poetry Feature by Gordon (RoughTradeEditor)

A quick check-up from the neck up…

I have absolutely no idea why I wrote that as a title for this post… Tru dat. But since it is what it is, I guess we might as well just go with it. Just go with the Flow of the Is of the Now… Oh boy… Anyway, since you’re here I was wondering if you could do me a favor. Well, the two features Relating to Humans and the Indie Author Book Selection & Review thingy are beginning to get a little love, meaning, there is stuff up there just waiting for someone to look at it… So, I … Continue reading A quick check-up from the neck up…

Sons of Anarchy: Hollywood’s Shakespearean Expression of the American Way of Life

FILM | TELEVISION | DRAMA | ACTION SONS OF ANARCHY RATING: ★ ★ ★ ★ Today is Thanksgiving Day in the United States, and since I am American I must, like all Americans are doing across the nation and all over facebook, offer my thanks. There are many things for which I am thankful: my family, my health, my freedom, football (football, the real kind, not soccer), you know, all the standard things a standard American is standardly thankful for. But in addition to those standards, I am also thankful for the miracle of technology, for it allows me to … Continue reading Sons of Anarchy: Hollywood’s Shakespearean Expression of the American Way of Life

Insurance Insures Ensures My Frustration

Back in February of this year, I posted the following gripe to my personal facebook page (as opposed to my public facebook page): I am fortunate to have a rather decent long-term disability policy with Mutual of Omaha, which I, thankfully, purchased through my former employer prior to the diagnosis of my cancer. One of my frustrations (of several) with the policy is, though, that Mutual of Omaha required/forced me to apply for federal Social Security disability compensation at the onset of my claim. Once approved, Mutual of Omaha then began deducting the amount the federal government pays me from … Continue reading Insurance Insures Ensures My Frustration

It’s FTW! Because We Love to Win! – part 2

I just had to say something raunchy and with impact right now because I want you to know right from the get go exactly what direction this post is headed. So, if you are not in the mood for a pissed off raunchy post (Another one?), you may just want to back click yourself slowly away from the site right now before you or anyone else gets hurt. Continue reading It’s FTW! Because We Love to Win! – part 2