As the Ch-ch-ch-change settles into the N-n-n-norm…

Hello Friends,

As the dust stirred from the confusion of change settles and the realigned way begins to come clear, I find I’ve little time for the all the mindless but pleasurable (to me) blathering on that I used to subject this blog to. So, instead of having the subtle worry of having to post to it looming over me by its presence on the menu, I’m taking it down for a brief respite.

Out of site, out of (my) mind… and all that.

Anything substantial I have to pass on will still be posted to the blog; but anything short of, up to, and beyond that of substance I foresee I’ll mostly be passing on from time to time and less than occasionally via our Newsletter Love (which I’ve just realized it’s been over a year since its last release so… now I have that less than subtle worry of dormancy looming over me).

Anyway…

Despite and/or because of my lack of mindless but pleasurable (to me) blathering blogging flourish, as the ol’ Willie Nelson so less than elegantly but still magically croons…

You are always on my mind…

#prayforthatofsubstance
#peace

Ch-ch-ch-changes…

Big changes in my life may be soon pressed upon me…

While not inevitable, these changes are highly probable…

Ergo, in anticipation, I shall press big and immediate changes upon this website and blog.

 

 

#prayfortheagentsofchange

 
 

So, about that newsletter of mine…

Have you had a chance to check out what’s going on with Newsletter Love lately? We recently announced that we will be sending out 2015 in style, meaning me sharing your poetry and other writing via the newsletter on New Year’s Eve and with a selected few being published right here on the blog as my first post for 2016.

So check it out, subscribe, and help us send 2015 out in poetic style.

Right on?

Write on!

 
 

Is it just me…

Or do you also think soundcloud is the best frikkin’ music app out there?

It looks sleek and fresh (if I may use the vernacular…no? I shouldn’t do that? …sigh), loads fast and light, and doesn’t make my computer or phone get all grouchy like youtube, and even pandora sometimes with all its painful adverts, does.

I mostly hang out at the Minimal Techno stream. It’s just the right vibe for all my writing and blogging and all other general creative wizardry, if you know what I mean…

This DJ (or whatever these music mixer dudes* are called), who goes by The Bearded Man (TBM), is my current crush…

 
 

*non-gender specific

SUBMIT YO! >> CLICK CLICK

Sayonara Marrowish

[notice]Because I am no longer going to blog at my Marrowish website, I just imported all of its articles, pages, and comments into this site. The following Marrowish article discusses my reasons behind the change.[/notice]

I’ve been thinking about doing this for a while now and now is as good as time as any: I am going to suspend blogging here at Marrowish and blog only at my other site BOJIKI.

I’m doing this for a couple of reasons:

The primary reason is that things have radically changed for me since starting Marrowish back in December 2009: now that the cancer is gone and I have this Lung GVHD/Bronchiolitis Obliteran thingy, things just don’t feel the same for me around here–I feel differently about my relationship with the Lung GVHD than I did with the leukemia for some reason, which maybe I’ll try to explore and write about later at my other site; also, I’ve changed a lot since starting this blog, both physically (I certainly don’t look much like that guy anymore in the banner photo) and mentally–I’m ready to move on.

Sayonara Marrowish

Another reason I’m doing this is because I’m lazy–I’m tired of managing two sites. I don’t intend on taking this site down, so everything written to date will stay up indefinitely, or at least until the evil Prednisone overlord who resides in my head forces me to take it down. And I will still write about Marrowish-type issues–I will just be doing it at BOJIKI instead (look for the “Marrowish” tag in the Tag Cloud or articles filed in the “Health” Category).

In addition to this site, I am also going to suspend tweeting at my Marrowish twitter account. If you want to follow my health updates, along with any of the other BS I tweet about, like updates about my books and other writings, as well as my musings about current events, you’ll need to follow me at twitter.com/kurtbrindley.

This place, and especially all of you who stopped by here to offer your support, prayers, and encouragement, really helped me cope with some crazy stuff this past year or so and I am very, very grateful for it.

I look forward to seeing you all over at BOJIKI.

OK. That’s it. Sayonara.

Feeling Pretty Darn Good!

It seems the better I feel the harder it is to keep folks updated on how I’m doing. Now that I am feeling better I have more options to do other things other than to sit and think about how bad I feel. Now, mostly I sit around and read and write and take walks with the wife and eat all of the delicious, healthy, cancer destroying foods that she prepares for me. So that’s why I haven’t been blogging or tweeting as much. Besides, it’s redundant for me to keep posting: feeling good again today day after day. But since I’ve stopped getting the regular doses of chemo and I’ve been taken off of most of my meds, that’s exactly how I feel. In fact, I feel better than I have in a long time, even since before my diagnosis.

Yesterday I met with my longitudinal doctor, that is, the doctor who has been my consultant and adviser since I was first diagnosed and who will be with me until the end. I have been seen by a boatload of other doctors for a boatload of different reasons, but it is my longitudinal doctor who I depend on most. I met with him and his boss. The purpose of this visit was merely a formality to give me one last checkup and their final diagnosis and authorization for me to proceed with my transplant. Everything is good. My counts are perfect and based upon all the tests I’ve had…spinal taps and bone marrow biopsies…the amount of cancer in my body is less than 0.04% or something like that. Pretty good, indeed.

I have only one more consult with a doctor between now and when I get admitted back into the hospital on 3/23/10. The consult is for the heart and as far as I’m concerned its just a waste of time…an evil plot to make sure I don’t stay away from the hospital too long.

Like I said, on the 23rd, a week before my transplant, I get re-admitted to the hospital so I can begin getting juiced up with some new kind of chemo. This kind will completely kill my bone marrow in preparation for the transplant. I’m definitely not looking forward to the chemo crud again, but it will mean I am one step closer to getting to the transplant and beyond. Again…pretty good, indeed.

So, as far as my blogging and tweeting go, no news is good news. I reckon once I get juiced up again I’ll be back to complaining on a regular basis as to how bad I feel. Misery loves company.