Omicron?! Really?! Couldn’t they have forgone the Greek alphabet for this variant of the Covid virus and come up with a less frightening, end of times name to call it?! On Friday evening, the World Health Organization gave the variant … Continue reading You have got to be kidding me…
…is actually a form of human therapy. UPDATE: Shift Change Continue reading Pets sleeping…
I have whined a lot here in the past, and I mean a lot… no, really… a lot, about how screwy my brain has become ever since I caught the leukemia bug nearly a decade ago and was deluged with excessive amounts of chemo.
Not to mention I still take a daily dose of the stuff as a prophylactic so I don’t come down with that nasty little bug ever again.
Anyway, long story short — I have developed some pretty heavy duty vestibular issues and other funky brain-related stuff as a result, so for the past little while I’ve been working on various techniques and exercises to try to strengthen the ol’ noggin up a bit.Continue reading “Rememborizing*”
FDA warns about increased risk of cancer relapse with long-term use of azithromycin (Zithromax, Zmax) antibiotic after donor stem cell transplant
The French study which the FDA based a recent safety announcement on had to be discontinued after two years because the rate of the return of cancer and even death was too high in those patients with cancers of the blood or lymph nodes who undergo a donor stem cell transplant and were taking the antibiotic azithromycin (Zithromax, Zmax) long term to prevent a certain inflammatory lung condition [LUNG GVHD/BOS].
Did not know Wayne Static had died in 2014.
What a frikkin’ bummer.
I’m a fan of Industrial Music — Rock, Metal, Electronic — with Nine Inch Nails being my typical band of choice whenever I’m jonesing for a deep, dark, dystopic fix.
But whenever I was in need for an adrenaline fix, Wayne Static — his stage name obviously — with his band Static-X would always get me to where I was fixin’ to go.
It’s been a while since I needed a high-tempo rush like that so I hadn’t heard nor thought of Static-X in many o’ moons; however, now that I’m to the point where I’m working out regularly, a Static-X classic popped up on my Apple Music Industrial Rock Workout Playlist that Apple nerds had kindly and conveniently curated for me.
Warning: If you’re not familiar with this genre of music, you may want to check, first, with your doctor to ensure your heart can handle it, and then, second, with your Priest/Spiritual Advisor to ensure your spirit can handle it, as well…
Continue reading “Drugs, Death, and Rock & Roll”
If I had been given a 14% chance of living to five years after my Lung GVHD diagnosis instead of a 13% chance, I would have then had to call my little self-help book HOW NOT TO DIE: In … Continue reading Get Mellow
When it comes to physical pain, it’s purpose is hardly in question: It focuses us to where our immediate attention and action is required.
We accidentally rest our hand on a hot stove top burner and, without our sense of pain, our hand, if it weren’t for our sense of smell, would become cooked well enough to serve up at the next meal.
We could laugh at this, but sadly and horrifically there are some who do not experience the sense of physical pain due to a rare condition known as congenital analgesia.
So… based on your very kind, honest, and funny feedback to my last post, it appears that Cards Against Humanity, while being fun and completely aligned with my temperament, may not be the game best suited for building up … Continue reading More Brain Drain Stuff
I may be mistaken, but it is my belief that we’ve all been to that dark, lonely place at least once or twice in our lives where we, and the lives we have led, seem… Insignificant. Less than. Pointless. It’s … Continue reading The Power of About
On this day five years ago, I received the news that a recent lung biopsy showed that my lungs were inflicted with a severe form of graft versus host disease (GVHD) called bronchiolitis obliterans syndrome (BOS). BOS, I came to find out, was a known but uncommon side-effect resulting from a bone marrow transplant (for leukemia) that I had had earlier in the year. And by severe I was told it meant the BOS was incurable, non-reversible, and, in most cases, aggressively fatal. I was also told — because I had asked and insisted on an answer — that, according to a National Institutes of Health (NIH) study of the time, BOS had only a 13%, five-year survival rate. In other words, there was an 87% chance that within five years I would be dead.
Well, it’s been five years and here I am – a newly minted Thirteen Percenter.
Can a brother get a “Hell yeah?”
Anyway… at my most recent appointment with my oncologist, in addition to his standard declaration whenever he sees me of, “So, I see you’re still alive,” he also declared that my present condition may just be a miracle of sorts because it appears that my incurable BOS may have actually been cured… somehow.
I don’t think I would be overstating if I said that, because of all my goings on these past five years – goings on such as leukemia, GVHD (and not just of the lungs, but also of the eyes, liver, and intestines), prednisone side-effects, cytomegalovirus (CMV), and heart failure to name a few – I think I’ve learned a thing or two about life in general and living it in particular.
Now, if you search around this site, I’m pretty sure you will find that much of my writing, mostly encapsulated in my haiku, reflects a lot of the insights and learning I’ve garnered from these goings on. However, just because I like you all so much and don’t want you to have try to sift through this site for days on end in an effort to discover these insights and learning, and because short, pithy lists are all the rage these days, I will identify for you the top thirteen things I learned about how to not only not die, but mostly about how to best live your life filled with happiness and meaning, regardless whether death is looking you directly in the face or not.
Okay, so here we go…
(OR CARE FOR SOMEONE WHO IS) I’d like to think that one or two of my three regular visitors (one of whom is me) come to this site to gain a deeper understanding of my creative writing by exploring my short stories, and poetry, and my insightful and sometimes witty flash fiction, and, most importantly, to buy my books. Yeah, that’s what I’d like to think. However, the reality is far from it. The unfortunate truth is that, by far, most people who visit this site do so because they are seeking out information about my diseases, past and present. … Continue reading If You’re Here You Must Be Sick…
Video courtesy of the National Institute of Health Continue reading The Brain, As It’s Never Been Seen Before
Courtesy of the National Institute of Health. Click on the image for information on the disease. Continue reading Meningitis Brain
And I don’t know about you, but for me, even sometimes at my old and calloused age, and no matter how times that old, dull saw “there’s no such thing as a stupid question” is drawn back and forth across my grainy, knot-holed brain, if I feel stupid about asking a question before I even ask it, then it is really hard for me to get up the gumption to get the stupid question out. Continue reading Ask the Question, I Dare You
I just had to say something raunchy and with impact right now because I want you to know right from the get go exactly what direction this post is headed. So, if you are not in the mood for a pissed off raunchy post (Another one?), you may just want to back click yourself slowly away from the site right now before you or anyone else gets hurt. Continue reading It’s FTW! Because We Love to Win! – part 2
The only thing that I hate more than an annoying nitpicker constantly hounding for and finding and resolutely declaring over and over again the error(s) of my way(s), is knowing that my ways are errored and not knowing how to fix them. Continue reading It’s FTW! Because We Love to Win! – part 1
I think and I write about all of this BS, this Way of Life BS and that way of life BS and all the goofy-looking uniform BS and all my pretentious and pedantic intent versus impact BS while I am being completely overwhelmed and embarrassed by the ridiculous politics and even more ridiculous politicians behind the current budget battle crisis that America is currently tearing itself apart over. Continue reading In Defense of the American Way of Life
My recent appointment with my GVHD specialist was one of the most informative appointments I have had yet. Even though not all of the information was good, it all brought clarity to my treatment and came with a decisiveness of purpose. The good news is… Continue reading Caffeine Therapy – Update #2
The blood tests show that my liver counts are pretty high, which might indicate a flare up of graft versus host disease in my liver. Continue reading Caffeine Therapy – Update #1
I was a late bloomer as a coffee drinker. Though I always loved its smell growing up—I still have vivid, fond memories of the bubbly coffee percolator sounds and the delicious coffee smells that I woke to every morning as a child—I found its taste repulsive and the heated spoiled crap breath that all coffee drinkers blast out even more so. I didn’t want to be complicit in that. Continue reading Caffeine Therapy