On why I choose to refer to those who help fund my film as “Donors”…

Admittedly, with these newfangled campaign funding sites such as Indiegogo and Kickstarter, where they have their "Backers" or "FUNders" or whatever else they call those who give money to a money-raising campaign, me referring to my supporters as "Donors" seems a bit anachronistic. However, there is a very important reason as to why I do. …

No Sense, Whatsoever

Without even mentioning my slowly deteriorating and dying lungs, it’s bad enough that I have lost most of the feeling in my lower extremities due to the neuropathy that was brought on by all the chemo I got juiced up with to treat my leukemia, or that I lost most of my ability to smell or to taste to only our tight-lipped God know why (my doctors sure as hell don’t know), but, because of the reemergence of GVHD due to my decrease in prednisone dosage, do I really need to now start losing my ability to see, as well?

Exploiting the Crisis

Do you think I really would have been able to pursue my life-long love of writing as aggressively as I am doing now had I not become stricken with cancer and then a chronic, debilitating lung disease? I think not...

Ask the Question, I Dare You

And I don’t know about you, but for me, even sometimes at my old and calloused age, and no matter how times that old, dull saw “there’s no such thing as a stupid question” is drawn back and forth across my grainy, knot-holed brain, if I feel stupid about asking a question before I even ask it, then it is really hard for me to get up the gumption to get the stupid question out.

Caffeine Therapy – Update #2

My recent appointment with my GVHD specialist was one of the most informative appointments I have had yet. Even though not all of the information was good, it all brought clarity to my treatment and came with a decisiveness of purpose. The good news is...

Denial

I know what I am experiencing is real, but it is just so hard to accept because the consequences are so big, so out of this world. The mind just cannot get itself all the way around it.

I Want To Know

There has been much news lately about how the Transportation Security Authority’s new screening procedures are upsetting the traveling public and, to be honest, all of the whining is getting on my nerves. On the one hand, we demand our government guarantee us a safe, bomb-free air travel experience, yet we don’t want to utilize …

Hair

Warning: This is potentially a TMI post. Read at your own risk! Before my cancer and all the chemo, I saw myself similar to how Ricky Bobby saw himself in the movie Talladega Nights: I’m just a big hairy American winning machine, you know. That was me. I was confident, happy, had a wonderful family, …

Test Results

Email from Kurt's doctor: The bone marrow biopsy report is not back. However, all the news thus far is excellent. His bone marrow flow cytometry shows no leukemia cells. The most sensitive test for detecting leukemia is the BCR-ABL PCR. This result came back as undetectable (meaning no leukemia). These are excellent results. Sincerely, [Kurt's …

Bloodwish

There has been much focus on finding a bone marrow donor match for me. It makes sense because the sole reason I am going through all of the nausea and discomfort of the chemotherapy treatment is to destroy my diseased and dysfunctional bone marrow and replace it with someone's healthy bone marrow. I named my …

Thank You Cancer

Before I was diagnosed with cancer, those closest me often heard me say that people make it hard for me to like them. I was, and still am I guess, a rather cynical person. But now, I’m finding that people are going to make it hard for me not to like them. One of the first things that I have learned since my disease is how awesome and full of love some people are.