Tag Archives: leukemia

The Purpose of Pain

When it comes to physical pain, it’s purpose is hardly in question: It focuses us to where our immediate attention and action is required. We accidentally rest our hand on a hot, stove top burner and, without our sense of … Continue reading

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My Chemo Brain Counter-Offensive

So… yeah. I’ve been having some chemo brain issues for quite a while now and I’m in search of interesting ways to build up my brain muscle to counter these “cognitive disorder” side-effects, as my neurologist so neatly calls them. … Continue reading

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The Power of About

THIS ARTICLE ORIGINALLY APPEARED ON MEDIUM I may be mistaken, but it is my belief that we’ve all been to that dark, lonely place at least once or twice in our lives where we, and the lives we have led, … Continue reading

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On why I choose to refer to those who help fund my film as “Donors”…

Admittedly, with these newfangled campaign funding sites such as Indiegogo and Kickstarter, where they have their “Backers” or “FUNders” or whatever else they call those who give money to a money-raising campaign, me referring to my supporters as “Donors” seems … Continue reading

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HOW NOT TO DIE: In 13 Easy Steps

On this day five years ago, I received the news that a recent lung biopsy showed that my lungs were inflicted with a severe form of graft versus host disease (GVHD) called bronchiolitis obliterans syndrome (BOS). BOS, I came to … Continue reading

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The Capital of Care

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Cancer isn’t pink…and neither is football

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If You’re Here You Must Be Sick…

(OR CARE FOR SOMEONE WHO IS) I’d like to think that one or two of my three regular visitors (one of whom is me) come to this site to gain a deeper understanding of my creative writing by exploring my … Continue reading

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No Sense, Whatsoever

Without even mentioning my slowly deteriorating and dying lungs, it’s bad enough that I have lost most of the feeling in my lower extremities due to the neuropathy that was brought on by all the chemo I got juiced up with to treat my leukemia, or that I lost most of my ability to smell or to taste to only our tight-lipped God know why (my doctors sure as hell don’t know), but, because of the reemergence of GVHD due to my decrease in prednisone dosage, do I really need to now start losing my ability to see, as well? Continue reading

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Exploiting the Crisis

Do you think I really would have been able to pursue my life-long love of writing as aggressively as I am doing now had I not become stricken with cancer and then a chronic, debilitating lung disease?

I think not… Continue reading

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Ask the Question, I Dare You

And I don’t know about you, but for me, even sometimes at my old and calloused age, and no matter how times that old, dull saw “there’s no such thing as a stupid question” is drawn back and forth across my grainy, knot-holed brain, if I feel stupid about asking a question before I even ask it, then it is really hard for me to get up the gumption to get the stupid question out. Continue reading

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Caffeine Therapy – Update #2

My recent appointment with my GVHD specialist was one of the most informative appointments I have had yet. Even though not all of the information was good, it all brought clarity to my treatment and came with a decisiveness of purpose. The good news is… Continue reading

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Denial

I know what I am experiencing is real, but it is just so hard to accept because the consequences are so big, so out of this world. The mind just cannot get itself all the way around it. Continue reading

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