Courtesy of the National Institute of Health. Click on the image for information on the disease.
Health
No Sense, Whatsoever
Yeah, it’s another one of those piss and vinegar kind of days…
I mean, Come! On!
Without even mentioning my slowly deteriorating and dying lungs, it’s bad enough that I have lost most of the feeling in my lower extremities due to the neuropathy that was brought on by all the chemo I got juiced up with to treat my leukemia, or that I lost most of my ability to smell or to taste to only our tight-lipped God knows why (my doctors sure as hell don’t know), but, because of the reemergence of GVHD due to my decrease in prednisone dosage, do I really need to now start losing my ability to see, as well?
Jesus Holy Christ!
And Mohammad, too!
(I’ll leave it up to you to determine whether those pleas are requests for spiritual intervention and/or guidance or just blasphemously rude exasperated expletives.)
And it’s even worse than bad enough that not only am I slowly losing my vision to a deeper and deeper foggy blur, but is it really necessary to have to lose it in such a painfully annoying way?
I mean, come on! That’s just a bit beyond the boundaries of good taste, as one of my favorite former clients used to often say whenever things got really fucked up on the job. (I’m sorry if me saying “fucked up” offends you, but I only say “fucked up” simply to keep this little aside paragraph in the spirit of things that one of my favorite former clients used to often say.)
But I mean, Holy frikkin’ Buddha, come on! Can someone just please give me a goddamn break?
When I wake in the morning, my eyes, especially my right eye, feel as if they have a big chunk of jagged glass in them. Seriously. I’m not exaggerating. Well…maybe a little. But still, it takes several hours until the pain associated with the stuck in the eye feeling diminishes enough to where it only feels like there is a modest chunk of rock in them instead of a big chunk of jagged glass. But regardless of how it’s described, it always feels like there is something stuck in them and it drives me absolutely frikkin’ crazy.
And then, I guess my eyes figured since they aren’t needed to see so much anymore, they decided to stop producing tears. My eyes are now constantly dry as a brittle bone. As a result, they burn so badly it feels as if they are being, not bathed in their natural tears, but rubbed down and cured with salt each time I blink.
And then, the slightest amount of light or breeze feels as if someone is thinly slicing into them with razor blades.
Pure torture.
Pisses me off and depresses me so because, all my life the sun was always my most bestest buddy, but now it is my worstest enemy. Not only can I not stand to even catch the slightest glimpse of the sun anymore because it is just too painful, but ever since my bone marrow transplant I can no longer risk getting sunburned because, at a minimum it could screw up my graft, and at a maximum it could kill me.
Sorry sun. I used to love you, but now I must hate you.
Let’s see….what else do I have on my docket of “poor me” gripes and whines for today?
Oh yeah, the medicine.
The docs have me on four different types of meds to treat my eye gvhd:
1. Artificial tear drops.
2. Drops that are supposed to help my eyes produce tears.
3. Steroid drops that are supposed to help suppress and slow down the damage done by the gvhd.
4. And an ointment that I squeeze into the eyes at night to help keep them moist while I sleep.
I could not survive without the artificial tears. I am constantly dropping them into my eyes. It’s a pain in the ass to have to do it, what seems like, every five minutes or so, but it’s a vital pain in the ass. And the ointment feels pretty good. But if the drops to help me produce tears and the steroids drops are working, I sure as hell can’t tell. The only thing I am sure that they do do is make my eyes burn and my vision blur even more than normal.
Here are a couple of examples of exactly how much my eyes burn: 1) My nose is always runny because of the burn. I couldn’t figure it out at first. I thought maybe I was coming down with another infection. Very annoying. 2) The burn from the dryness must really warm up the surface of my eyes because after I drop the artificial tears into them and then put my glasses back on, the lenses fog up a little around the eyes. Seriously.
I dread it when it comes time to have to put the pain producing medicine drops in my eyes. It takes a good hour afterwards before my eyes return to “normal.” Unfortunately, the supposed tear producing drops go in twice a day and the steroid drops go in three time a day; so, for about five hours out of each of my day, I get to self-inflict even more pain on my painful eyes.
Fun.
And you know what scares me the most from all this? It’s that I am having a harder and harder time doing what I love to do so much, and that is this, what I am doing right now.
Writing.
Working on the computer.
As I wrote this pathetically whiny draft on a Word document in a completely darkened room, I literally could not see anything much more on the screen than a glowing blurry mass of white characters. The characters are white because even the light, especially the light, from the computer is torture, so I have to invert the colors of my documents so that the page is black and the characters I type are white.
You should see how ridiculous I look right now as I prepare this…all squinty-eyed and mouth opened, glasses pushed up on top of my thin and disheveled-haired head, face pressed up as close as possible against the screen in a near-failing effort to read the crap that I’m typing.
Expect to see, which I am sure you do, see things with your eyes that is, and expect to see with them even more annoying typos in my junk than normal.
Yeah, it’s all getting really hard.
And stressful.
To be honest, I don’t know how much longer I can do it.
Write, that is.
It is just hurting too much.
And I suppose, as I continue to reduce prednisone dosage, it’s only going to get worse.
And if I can no longer write…
especially after all my life wanting to have the time and ability to be able to write full-time like I have been able to do since all the cancer fun started…
I don’t know what I will do.
But I do know I will be very sad until I figure it out.
But as of now, I do not have it figured out.
Because all my lack of senses…
makes no sense to me, whatsoever.
I mean, come on.
Exploiting the Crisis
Rahm Emaneul, President Obama’s first Chief of Staff, was famously quoted as saying, “Never let a serious crisis go to waste” in response to the financial meltdown of 2008.
I imagine most would regard that quote disdainfully—a little too Machiavellian for their pleasant palates, perhaps.
But you know what? It is that exact mentality towards life in general that I have tried to apply to my life over the years, and I have been trying even harder ever since I was diagnosed with cancer and lung disease.
Because let’s face it, regardless whether your palate prefers pleasantries or not, the saying that we all know, every single one of us, that expresses so well about the horrible inevitables that life sometimes trips us up with is not “Flowers Happen!” or “Perfume Happens!” No, the saying we all know and have probably even declared from time to time in our sometimes horribly inevitable lives is:
“SHIT Happens!”
And do you want to know why we say it?
That is a rhetorical question because I know you all ready know.
We all know the answer because no matter how hard we try, no matter how much we study to get good grades, no matter how many hours we put in at work to make the money that we use to build our little nests for which to lay in our little eggs, no matter how well we plan and believe we are prepared for all the horrible inevitables we find in our paths, sometimes life can really stink.
And sometimes it can really, really stink. Sometimes life can be so smelly our noses cannot even become desensitized to it. Sometimes the smell is so bad it seems like it has become our permanent atmosphere. And in order to survive, we have to breathe it in no matter what, knowing that each breath we take is poison and will make us gag, or even kill us.
Now that is one stinky life, in my blurry view.
Fortunately for me, one of the side effects from all of the shit that has been happening in my life lately is that I lost both my sense of smell and taste.
Pretty handy when life smells so badly that you can almost taste it.
Shit happens. Yes it does.
Another less offensive way to those whose sensitivities are easily offended, and less poetic, too, of saying the same thing would be to say that life is nothing more than moving from one crisis to the next.
I guess how we manage life, then, is dependent upon how we define and deal with crises.
I am not sure how you define and deal with yours, but I define my crises as “inevitable opportunities” and, like I all ready more than alluded to with the title of this article, I deal with them by exploiting the hell out of them.
For instance, this blog is nothing but a pure and simple exploitation of the biggest crises that I have ever faced in my life.
I have been exploiting the hell out of my cancer and lung disease as much as I can. Hell, I tell you exactly as much in my cheeky, self-infatuated, hand-written blurb about me under my obviously intentionally depressing looking picture of me, used only to get you to feel sorrow for me so that you will be more compelled to read my exploitative writings.
But, there’s more to the exploitation than that.
I may sarcastically say I am exploiting my disabilities by trying to get you to feel sorry for me, but what I am really doing by all that nonsense is attempting to cope with my insecure feeling of trying step out in my new life as a writer and an author. It’s all pretty scary for me.
What I really mean when I say I am exploiting my disabilities is that I am trying as best I can to take advantage of the opportunities my crises have provided.
And the opportunities are many.
Do you think I really would have been able to pursue my life-long love of writing as aggressively as I am doing now had I not become stricken with cancer and then a chronic, debilitating lung disease?
I think not, so I am exploiting the hell out of my disabilities to blog and to facebook and to tweet and to finally publish the novel and poetry collection that I had never been able to finish before because life had always gotten in the way.
Do you think I really would have had the time to share each day and grow in partnership and friendship and love with my wife and children had I not become stricken with my diseases?
I think not, so I am exploiting the hell out of my disabilities by waking each day looking for new ways to love more and to be more loving and to continually grow as an individual.
I could give many other examples of how exploitative I am and how I am not letting my crises go to waste, but these will do for now.
And sure, sometimes the smell of the crises in my life are so overwhelming to me that I become numb and despondent from the smell, but those days, too, are nothing more than smaller crises that must be dealt with in the same manner as all the others: by realizing that no matter how hard I try to be positive and productive, sometimes it—my life—will just hurt too much and I am going to become deeply depressed and I am going to feel so sorry myself for being so unlucky and I am going to feel so resentful towards you for being so lucky and I am going to sit in my cocoon-like chair and let myself sink into a almost inescapable (so far) black hole of depression.
It happens. I get depressed. And I realize it will continue to happen to me from time to time until a cure is found for my lung disease.
But I accept that it will happen.
And when it does, I will deal with it by exploiting the hell out of it.
~~~~
Oh, by the way.
Now that I got you feeling sorry for me…
How about reading [download id=”7″] and letting me know what you think of it? 😉
Ask the Question, I Dare You
When meeting with someone with whom you are consulting and seeking advice from and relying on for critical information, someone like your doctor, it is my belief that you should not leave that meeting without asking him or her at least one question.
Funny thing about those paradoxical little buggers, though…questions, that is, not doctors…is that it seems that the more we know about something, the easier it is to formulate and ask questions about that something; yet, the less we know about it, the harder it is for us to come up with questions to ask about it.
Well, that’s usually how it is for me, anyway.
And I don’t know about you, but for me, even sometimes at my old and calloused age, and no matter how many times that rusty, dull saw “There’s no such thing as a stupid question.” is drawn back and forth across my grainy, knot-holed brain, if I feel stupid about asking a question before asking it, then it is really hard for me to get up the gumption to get the stupid question out.
I don’t like Stupid.
It hurts too much.
And, at least for me, far too often.
Oh, and brother…and sister…let me tell you, you should have seen what a nervous mess I was in high school whenever I wanted to ask a question but felt it would make me look stupid(er) if I asked it, which pretty much encompassed just about any question I wanted to ask all throughout high school.
Not pretty.
I am not so bad about asking them now because, long ago, I embraced and (as is evident by all of the ridiculous nonsense that is going on in this ridiculous blog) even began exploiting my ridiculousness, right along with my insecurities and fears…and yes, even my infirmities.
Over time and after a lot of uncomfortable suffering, I have learned that the best way for me to face and overcome all my insecurities, fears, and just about anything else that makes me feel foolish or awkward, is to break them down in my mind as far as I possibly can, no matter how serious or sad or sickly they may be, right down to the ridiculous.
I mean, come on! How ridiculous is it that a six feet five-inch, former 230 pounder, former somewhat burly and excessively hairy self-proclaimed (remember now, I said former) “Manly man” could be afraid to ask a simple question, regardless of how stupid it is?
Pretty frikkin’ ridiculous, that’s how!
And that’s all there really is to this breaking-things-down-to-ridiculous thing.
But in defense of my former self—no matter the size or strength or amount of body hair one has, Stupid, armed only with gnawing and piercing barbs of doubt and indecision, will whip just about anyone’s stupid ass just about every stupid time.
But back to my ridiculous attempt at explaining how ridiculous just about everything serious in life can be…come to think of it, I should change the title of this ridiculous blog from here is where it hurts to TAKE NOTHING IN LIFE SERIOUSLY…SERIOUSLY!
Nah, that would be a seriously ridiculous thing to do, wouldn’t it?
Anyway…
And once I have broken down my insecurities and fears and, yes, even my infirmities, to their most purest state of ridiculousness, I then can happily, and often giddily, laugh at them and ridicule them for their ridiculousness, and then exploit the bloody hell out of them like I so frequently do, mostly right here on your friendly neighborhood “here is where it hurts” ridiculous blog.
So yeah, I do not really have a hard time asking stupid questions anymore.
Howeeeever…depending on the situation or on whom I am directing the stupid question to…
Every once in a great while, I just might have a hard time getting the gumption up to get that stupid question out.
Stupid me.
*
When I was diagnosed with cancer, a form of leukemia called Chronic Myelogenous Leukemia in Blast Crisis with the abnormal Philadelphia Chromosome (a real tasty mouthful, huh?), everything happened so quickly and the chemo and the steroids and the other drugs were pumped into me immediately and so often, and because I knew so very little about cancer in general and CML in particular, not to mention all the procedures and protocols and pokin’ and proddin’ that it takes to treat it, either I did not or I could not ask the questions I now feel I should have asked about something as devastatingly important as was what I was then going through.
All I could do, as I pathetically lay in my hospital bed while wrapped in my chemo and drug-induced blanket of fog, which I would occasionally and nervously peek out from under to stare blankly back at all the surreal, masked faces of my family and friends and doctors and nurses and social workers and cleaning staff and food attendants and anyone else who floated in and out of my room at any given time and who whose gracious mask-muffled encouragements sounded strained and distant, while their eyes spoke loudly with the voice of their heart of their concerns and their uncertainty and their fears, was to feel deeply and pitifully sorry for myself.
That constant sorrow took just about all of my energy, leaving little for the care or concern to ask the questions I probably should have been asking.
To cope with my lack of care or concern, and so that I could focus on feeling sorry for myself, I kept telling myself that I had little to worry about regarding this cancer thing because I was being cared for and treated by THE Johns Hopkins University Hospital, which was repeatedly voted as the number one health care facility in the nation. At least that is what all the self-promoting, self-congratulatory posters that were plastered everywhere advertised.
Well, as we all know, regardless of an organization’s reputation, even if it is one of sustained superior performance and results such as JHUH says of its reputation, they are still filled with a fallible and fickled species called humans who, while known to do some pretty fantastically wonderful things from time to time, are also known to do some pretty ignorant and stupid things just about all the time.
So, regrettably, in some part because I probably did not assume enough responsibility and make enough effort for my care early on to ask the questions I probably should have asked my doctors, and, in more than some part, because of a few stinkers of medical professionals who were involved in my care and treatment from just about the beginning of my cancer diagnosis and who, I firmly believe, excelled at mismanaging my said care and treatment in an exceptional manner, I feel that my health condition is worse off now than it should be as a result of our collective “efforts.”
And that is how I have come to my belief that one should never leave the doctor’s office without asking at least one question.
Here’s a quick question for you:
What do you call the medical student with the lowest GPA in his or her graduating class?
Doctor, of course.
And here is another revelation that dawned on me during all of this cancer and subsequent Graft Versus Host Disease, stuff of mine:
Doctors, as smart and highly trained and impressive and sometimes, not always, but sometimes, intimidating and overbearing as they are, are, fundamentally, only high paid consultants.
When we get right down to it, they can only make recommendations and give advice, they cannot decide for us.
Only we can decide what is best for our health.
And for us to decide what is best for our own health, we must have as much relevant information possible to make the best decision possible.
And as smart and highly trained and impressive as most of our doctors truly are, they cannot yet read our minds.
For them to be the best consultants to our care and treatment they can be, and for them to be able to provide us with as much relevant information possible so we can make the best decisions possible, and regardless whether they want to or not or don’t have time to or not or are too tired to or not or whatever or not, we must ask them the most relevant questions we can ask.
Some of these relevant questions will be deep and probing, and others will seem shallow and stupid, but all must be asked in order to prod and pull the genius-matter free from our doctors’ very big and very expensive brains so that it can be reconfigured and presented to us in a way that we mere mortals can understand.
Asking relevant questions to very smart people like doctors, is tough, especially if these doctors are specialists. These stereotypicallybedsidemannerless barons of the brains are so smart, in fact (and in fiction, sometimes, too), that they probably have forgotten more about their area of expertise than we could ever attempt know, even if we factor in the internet. And when we do not know much of anything at all about the subject that we want to or need to know about, it is even tougher to ask relevant questions. And when we are afraid that by asking a question it might make us appear stupid, which may just be the case, then that is just about the toughest question of all to ask.
But, we must find, or fight, our way through all that toughness.
And if, even after we have gotten over our fear of looking stupid, we still cannot for the life of us come up with one single relevant question to ask, then at a minimum, at the very least, we should ask:
“Hey Doc, if you were me, what questions would you ask you to help you, er, I mean…me?,” Whoa boy, now this question has me confused.
Let’s try running through that question again.
“Hey Doc, since I cannot think of any relevant questions to ask you, how ’bout you tell me what questions I should be asking you so that, with your answers, I will be able to make the best health care decisions possible?”
Or…something similar, but hopefully much less discombobulated, to that effect.
But you get the point, right?
Just ask the damn questions, will ya?
It’s FTW! Because We Love to Win! – part 2
FFFFFUUUUORNICATE!
Not the word I really wanted to say but it has somewhat of the same meaning and impact I was looking for.
Although, it surely does not nearly have the versatility of usage and universal appeal like the word I wanted to use does.
I guess I could have used COITUS! instead of FORNICATE! to try to express my frustration, but COITUS! has even less of an impact I was looking for than even the replacement word of FORNICATE! has, not to mention its even less raunchy meaning. For, as I am sure you know, COITUS! only means sexual intercourse in general, whereas FORNICATE! means sexual intercourse with someone whom you are not married to.
Sexual intercourse with someone whom you are not married to—now that’s raunchy with impact.
And I just had to say something raunchy and with impact right now because I want you to know right from the get go exactly what direction this post is headed.
So, if you are not in the mood for a pissed off raunchy post (Another one?), you may just want to back click yourself slowly away from the site right now before you or anyone else gets hurt.
…
Okay. That seemed to do the trick. It looks like all of the sissies have now departed.
It also looks like the site is now pretty much empty.
And that means that all of us who are still here, the one or two of my three regular readers, one of whom is me, are here with the foreknowledge that it just might get ugly up in here.
So, would you like to know what it is that has me so burning mad that I felt the need to entitle this madness (mad-mess?) of a post with a less-than-satisfying, makeshift expletive?
No, it’s not the fact that some liberal Brit of a nutjob recently tried to cream our proud Aussie-American Rupert Murdoch right in the pie hole with a shaving-cream-filled-pie.
That certainly made me mad, don’t get me wrong, someone attacking such an defenseless upstanding ruperty Robber of an All global corporate Baron AMERICAN WINNER! like that.
But, as mad as that attack made me, it didn’t quite make me cussing and burning mad.
What does have me cussing and burning mad is the attack that recently happened in Norway.
But it is not just the fact that Norway, one of my most favorite and one of the most idyllic and previously-unscathed-by-all-the-madness places in the world, was just brutally victimized by a senseless act of terrorism that has me burning mad.
I am more saddened and hurt about that than I am mad right now—though, again, don’t get me wrong, I certainly am also mad—that the great and beautiful country of Norway, a country I once was honored and fortunate enough to visit for two blissful weeks, although not in a terrorist capacity—I MEAN TOURIST!—not in a tourist capacity, but in an official, (and occasionally a wee little drunken, but merrily so), navy capacity during an extended two-week port of call, was ruthlessly attacked and that all of the great and beautiful Norwegians whom I love dearly are now suffering so from the attack.
My heart and prayers truly do go out for all Norwegians, for I truly do love them and their beautiful country.
What has me cussing and burning mad about the attack, though, is how it made me instinctively and without a doubt think, just like I always do whenever a First World country (We had a little First World discussion going on on my facebook page (FOLLOW ME!) the other day and it got me to thinking. And upon conclusion of the thinking that it had gotten me into, I concluded that the term “First World” has such a superior, almost racist ring to it, no? Sure it does. Because someone from the First World probably came up with it. Some circa 1950yish or 60yish, poli-sci, internationally relating, racist without even trying, media, spankin’-and-wankin’-the- wonker, wonk, probably. But hey, don’t blame me for using it. I am not the word genius who comes up with these catchy terms. I am just a lazy First World slug who repeatedly parrots whatever he hears on FOX (I just want to publicly (because the Lord knows we all know that He sure could use the publicity) give thanks to God right now for giving us FOX…and, by extension, Rupert Murdoch; for, without FOX, or Rupert, what else and who else out there is there that is so readily and rightly available for me to use in this type of an example for this type of a poorly penned (I would have used the word “typed,” seeing that is exactly what I am doing to this fornicated up blog post of mine—typing up this fornicated up blog post of mine, not penning it up, that is—but I had just used the word “type” twice now, one only four words ago and the other, not quite as only, ten words ago (counting back from the word “penned” located directly before this parenthetical expression, not the word “ago” that is somewhere (I’m not exactly sure where because I am starting to get confused) within this parenthetical expression, that is, and, although “type” in both of those two instances are used with the same meaning, they are used with a different meaning than the word “typed” would have had had I had used it (Huh? Holy cow! I’m not sure if you had noticed, but there sure are a lot of hads back there. I just used three, nearly consecutive, hads and, although I’m no English major—Crap. Come to think of it, yes, I am an English major…or, at least, was one once a long time ago, so long ago, in fact, that the major now has less than minor impact on my memory—anyway, despite my apparent waste of an English-as-a-First-Language degree, as far as I can tell, I think I used all of those nearly consecutive hads all correctly…and completely unconsciously. I bet if I had tried to come up with a sentence that had had three, nearly consecutive, hads, I would have had a hell of a time doing so. And had I had done so, I am not so sure I would have had been able to do so without having had used the hads incorrectly. (Such crazy kooky English we speak.)) instead of “penned,” had I had used “typed” instead of “penned” then there is a chance that I may have seemed and sounded rather redundant, and I certainly do not want to be accused of being a redundant blogger who repeats himself; besides, “penned” seems to have more of a broader context in meaning, one that has the connotation of, not just the act of penning, but also the act of conceptualizing the ideas and ideals behind what is being penned, than does the more specific sounding “typed,” which only connotes images of some dork like me with, like a dork, both of his pointer fingers sticking out while they hover over the keyboard in search of innocent and vulnerable letters to repeatedly poke and victimize in a slow, tortuous—tortuous as in Chinese Water Torture tortuous, only instead of using slow, dripping water to torture the innocent and vulnerable letters, I use both of my dorky-looking pointer fingers—repetitive ritual. And, if you hadn’t noticed, I kinda have a p-thing going on.) politically postured pretentious parody of a post?) or reads (mostly just the well-crafted, and by well-crafted I mean overly sensationalized, headlines) on Drudge.) gets attacked, that the attack was really somehow directed at America, which, by extension, means that the attack was also somehow directed at me, because I am, after all, an American, aren’t I? And I think all of this immediately upon hearing the news of the attack and without knowing who perpetrated it and why.
And it is that, that immediate and reactive and wholly unwanted and unwelcomed thought of mine, which has me cussing and burning mad.
Why?
Because I (And by I I also mean America, because, like I all ready said, we, America and I, that is, are both one and the same, right?) am so very sick and tired of not only feeling responsible for all of the mesmerizing mounds of BS that are piling up all over the globe, I am also, and even more so, very sick and tired of being blamed for creating them.
So much more so that I am cussing and burning mad about it.
But what is a broken boy like me (I know, I know. I’m pathetic.) to do about this cussing and burning madness?
The only option I see available for this broken boy like me is to parody—I mean pronounce!—the only option for him is to pronounce, as loudly as he can, in a public forum for all to hear if he is so able, so that he can, at least therapeutically, anyway, and perhaps, somewhat metaphysically even, relieve and release himself of this madness (mad-mess?).
And, just by coincidence, here we all are, right smack-dab in the middle of my public forum.
So, on with my parod—pronouncement!
The way I see it, we get the hate and blame for all of the global mounds of BS for one reason. And it is the same reason that McDonalds gets so much of the blame, or, better yet, that FOX, meaning Rupert Murdock, gets so much of it as well. We are hated and blamed for all of the global mounds of BS, not because of any specific crime or injustice committed by us, per se, but simply because of jealousy.
The rest of the world is jealous of us.
We are hated and blamed by the rest of the world for all of the global mounds of BS just because we are so good at being successful, just because we are Winners!
And because we are such winners, all the Losers in the world hate us for it.
Period.
End of story.
End of that story, maybe, but not this one that I have going on right now.
This one continues…and continues…and continues…I know, I know.
Heck, it is the people and organizations and countries like Rupert Murdoch, like FOX, like America, that put the FIRST in First World to begin with.
In fact, the First World has been so completely successful in all that it does, that we do not even use the term Second World anymore. We kicked the ass of those second place Second World losers so thoroughly and completely that we knocked the Second World term right off of the metaphorical geopoliticalmediamarketing map and when referring to any other world other than the dominant First World, we jump right down to those poor, helpless Third Worlders, because we First Worlders certainly do not want to be accused of being insensitive to their needs and dependencies.
And, heck again, we use these genius word terms (just because the smart people use them , which means these terms must really have some import and gravitas so we, us notsosmart people, had better use them, too) even if we don’t really know what they mean, or meant and now have come to mean.
Is it my fault that the First World (So what in the blasted Christmas Christ do these “World” terms really mean anyway? While I do not know what they are meant to mean to you, I know what they are meant to mean to me when I use them now, and that is for the First World term to mean and to embody all of the successful, industrialized countries like, like as in they want to be like, America, which is, a Winner!. Nobody uses and cares about the Second World term anymore. And the Third World term is reserved for all of the rest of the world’s hapless Loser! countries. But, if my drug-induced fog of a memory (I know, I know. I’m pathetic.) serves me correctly, which is highly doubtful (Of course, I do have google (garbage) (at my) disposal) that I could endlessly use for free of charge (except for the slight cost of chronic and irreparable brain cell atrophy from neglect) if I really wanted to check for accuracy. But I don’t really want to check because I am lazy; plus I rather like having my drug-induced fog of a memory (Pathetic, I know.) to fall back on and blame in case and when that I am wrong, I am almost pretty sure that the original meanings of the Ordered World terms were slightly different, tasting less of a sweet, economic corporanational success story flavor and more of a bitter, geopolitical alignment, East-Coast-Bloc-West-Coast-Bloc-I’m-gonna-bomb-on-their-sucker-punk-ass flavor, where the First Worlders were the countries that, right after World War II, a REAL war, aligned themselves with America because America is a Winner!, and its democratic principle and values in its principled fight against evil wherever it may reside. Second Worlders, back before the Second Worlders got their asses waxed all over the geopolitical map and it was still a valid term, were the countries that, right after World War II, a REAL war, aligned themselves with the Soviet Union, back when some, mostly useful liberal idiot Losers!, still regarded the Soviet Union as a Winner!, and its evil principles and values in its principled fight against what it regarded as evil, meaning, of course, America and the rest of the First World countries. And then there were the hapless Third Worlders who couldn’t make their minds up as to what principled -ism they should believe in right after World War II, a REAL war, or which Worlders, First or Second, they should align themselves with, so they remained unaligned and forever stamped as indecisive Losers! And of course, once one (be it a person or a country) is labeled and that label is stuck like glue right across one’s forehead for all to see and to respond to accordingly, then sooner or later the labeled one eventually will also begin to respond accordingly to what the label promotes him or her or it to be. Once that has happened, the label is no longer a label, it has now become a self-fulfilling prophecy. So, keep your chins up Third Worlders, you all are frikkin’ prophets! How cool is that? But all of that is old news. All that is what those World terms used to mean, at least as far as my drug-infested mind can tell. All I got to say about that, and then some, is thank God we don’t have to worry about all that “what used to be” crap anymore. We only have the First and Third Worlders left, and we only know them as the respective economic Winners! and Losers! that they have come to be, and to which lively, yet somewhat redundant (Damn it! I hate being a redundant blogger who repeats himself.) discussion we return…) in general and America in particular won the Cold War and became the only remaining, to coin the catchy phrase from the recent navy marketing geniuses, “Global Force for Good” (Whoa boy…that’s a dandy. Way to go navy.) and sole Super Power? It certainly isn’t my fault that’s for certain. You know whose fault it is? It’s all of the global losers out there who let us wax their asses all over the geopolitical map who are at fault and who must now abide by and put up with our, our as in America and the rest of the America-wannabe-First-Worlders, many United Nations-filtered dictates and orders, orders and dictates similar to the ones our, our as in America’s, compulsive and stressed-out and somewhat done-in from being over-debted and under-appreciated parents (read: First Worlders), our single or double or traditional or non-traditional-bordering-on-the-verge-of-perverse parents who, often and with (lack of) purpose proudly yet prudishly pronounces (what’s with all Ps today?) to their confounded and uncooperative sparkle(s) in their eyes (read: Third Worlders) something that sounds something like this out-of-tune-because-of-overuse ditty of a dictate: “Do as we Winners! say you little Losers!, not as we Winners! do.”
So don’t blame me, meaning America, meaning the First Worlders, meaning all of the Global Winners! for all of the mesmerizing mounds of BS that are piling up all over the globe, blame them, meaning the jealous America haters, meaning the Third Worlders, meaning all of the Global Losers! because the impetuous Loser! bastards did not do what I told them to do, they went ahead and did what I did, instead.
*
Okay, so looking back on this pig of a post, I guess there really wasn’t as much cussing as there could have been.
And there certainly wasn’t any raunchiness—well, perhaps the post is a little raunchy in the pornographic exploitative FOX news sense, but it certainly is not raunchy in the “Oh yeah! Kurt’s about to share some hardcore skin videos with us!” sense.
No, it is not raunchy in that sense at all.
And if that is what your expectations were when you plunged into this not-quite-a-cesspool-but-certainly-not-spring-watery-pure-either of a post, I apologize for overselling you with my blatant attempt at hooking you and drawing you in with promises of much cussing and raunchiness.
So, in an effort to make up for the error(s) of my way(s), I offer you the following video, a little something that may just satisfy those unfulfilled desires and expectations of yours that drew you into this mad-mess of a post to begin with.
But please be warned.
This politically pornographic video may just do damage to your sensitivities…all of them, every single last one of them…especially if you are an American.
Therefore, if you do not want your sensitivities damaged, and especially if your sensitivities are of the sort that are easily damaged, do not watch this video.
And even if your sensitivities are of the sort that are not easily damaged, please seriously consider not watching this video because it, my friend, is a serious heavy hitter, one that is looking to specifically target your sensitivities, especially those that are easily damaged, and especially those that are American.
But, then again, if that is the case, if you are an American with overly sensitive sensitivities who becomes hurt whenever the error(s) of your, and by your I also mean America’s, way(s), regardless of how good and well-intentioned this way(s) was and is or how much money you spent or spend on it, just like a good Christian (country) should, to ensure it reaches its intended destination, which is the helpless and poor Third World recipient who should be ever so appreciative of your benevolence but who probably isn’t because he or she does not yet understand the current market value of Christian (country) values, are pointed out to you, then perhaps maybe you should go ahead and watch the video after all.
But do not say I did not warn you.
May God bless us all, especially our Norwegian friends who are hurt and suffering, and whose idyllic innocence has been forever taken away, at least it has been forever taken away from my heavy heart and sallow mind.
It’s FTW! Because We Love to Win! – part 1
First off, for all of you losers out there, it’s FTW!, not FSP!
And for all you dinosaurs out there who have no clue, FTW! is not a dyslexic acronym for WTF?, it stands for “For the Win!”
We winners tend to use it often.
And if you do not know what WTF? stands for my response to you is “W! T! F! Over!”
Come on man! or woman! Get with it. WTF? stands for What The…ah forget it. I’m not even gonna try. Heck, I’m not even gonna recommend that you try to “google it” or, in your out-of-date-case, that you try to “Ask Jeeves it” or try to “Dogpile it.” Because if you don’t know what WTF? stands for by now then you are such an outdated dinosaur that you had just better wait until one of the three people left working on your dismal local print newspaper gets around to writing a profile on it in the “What’s New!” section.
Then you’ll know for sure what it means.
But first you just hang on and around and wait for it.
Wow. Print newspapers.
Now there is a real winner of an industry.
It used to be, perhaps.
But not anymore.
Minus all you dinosaurs out there, when was the last time the rest of you read a print newspaper?
For more than a few of you, I’m sure, the answer is never.
Because as soon as this internet thing came along, which, in the grand scheme of things, really isn’t too long ago, the print newspaper industry began to fold like an origami crane.
I bet you thought I was gonna say fold like a newspaper, right?
You’re so predictable.
But back to winners.
I like the internet. It’s a winner.
And since the newspaper is no longer a winner, then I no longer like it and I will no longer associate myself with it.
Because I only like winners.
So what about FSP!, you ask.
Any guesses?
Don’t worry, I don’t expect you to know what that one stands for because as far as I know it is a Kurt original.
But hey, aren’t they all?
All of the good ones, at least.
I’ll blame all the bad ones on some loser.
FSP! is a good one, though, and it stands for “For Second Place!”
Told ya it was good.
So, if I were to unacronymize what I said in the first sentence of this article and write it all out it would be:
“First off, for all you losers out there, it’s For the Win!, not For Second Place!”
It’s FTW! and not FSP! because Americans only love winners, don’t they?
I mean, we!
Americans only love winners, don’t we?!
That’s what I meant to say.
Honest.
Too late. I am sure one or two of my three regular readers, one of whom is me, is saying right about now, “See! There he goes again! There. He. Goes., talking about America as if he isn’t proud of it and of Americans as if he, himself (I never really understood why we do all that “I, myself” and “you, yourself” and you, yourselves” and “he, himself” and “she, sheself” (huh?) and “we, ourselves” over pronoun-cification of stuff. Who else would this one or two of my three regular readers be redundantly referring to when she (For some reason, in my mind I imagine (Duh, where else would one imagine if not in his or her mind?) that this one or two of my three regular readers I am referring to is a she. You can imagine this one or two of my three regular readers I am referring to to be whomever you want him or her to be, but to me, I imagine this one or two of my three regular readers, one of whom is me let us not forget, who I am referring to to be a stereotypically white, coming-to-us-(at us?)-live-from-smack-dab-in-the-middle-Middle-America, more-or-less-than-middle-class, less-or-more-than-middle-aged, and significantly-more-than-average-(Since I am getting ready to say the word “weighted” next, and since the words “middle” and “average” mean about the same thing, at least in this instance anyway, I guess I could have used the word “middle” again instead of the word “average” so that I could have continued with the annoying parallelism that I had going on; but, to me, “middle-weighted” sounds a bit too forced, even for such a forced parallelism such as the one I had going on. “Average-weighted” just sounds a bit more natural, don’t you think? Do you think? Besides, if I had used “middle” instead of “average,” then I wouldn’t have had the opportunity to include this, yet another, annoying parenthetical expression that I intentionally, yet ever so smoothly, included for you to stumble over just so I can keep you confused and uncertain as to exactly what my stance on anything really is, because, let’s face it, it is much safer for me to straddle the proverbial fence than it is to actually declare forthright and for sure what I truly believe in. Accountability can be such a bitch. Oh, and I also do it, all these blasted parenthetical expressions, that is, so I can see exactly just how far I can go with this shtick of mine before you finally tell me once and for all to take this shtick and shtick it up my logistical shoot for shooting waste and other matters such as BS like this blog post. But that’s all it is, right? All this BS is nothing more than a shtick, which I am sure most of you are all ready aware. But, shtick or no shtick, I bet some of you out there, at least those of you who think of yourselves as Winners!, will, in your over-compulsive effort to Win!, probably read and re-read this section in an over-compulsive effort to find a forgotten or misplaced or out of character closing parentheses or dash (not hyphen, no no, not hyphen) or hyphen or missing comma or dangling participle or some other kind of point-keeping whatnot method so that you can say while pointing your finger like a jack hammer right at the spot on your monitor where you found the error(s) of my way(s), so to speak, that you are referring to, “Ha! Looky here, Brindley! Looky right exactly here at your mistake(s), you pompous dumbass!” and then proudly declare yourself a Winner! and properly declare me a Loser! (As implausible as it may sound, it is plausible, though highly unlikely, that there is at least one little bastard-of-an-error in here that even I may have overlooked. So all of you annoying pain in the ass nitpickers, do your thing and find it for me; and if you do find it, and I know you will, let me know, and I know you will. Because the Lord of lords and even you knows, and soon so will you if you don’t all ready, the only thing that I hate more than an annoying nitpicker constantly hounding for and finding and resolutely declaring over and over again the error(s) of my way(s), is knowing that my ways are errored and not knowing how to fix them.) Well, I’m pretty sure someone might do that. I know I would. Heck, I do that even when reading cereal boxes or pill prescriptions or condolence cards so why wouldn’t I do it when reading someone’s blog? And if you are one of those losers who are too nice to go around trying to nitpick other people’s writing mistakes, let alone their many other misfortunes besides their miserable writing, then let me tell you you really should try it because it feels sooo good whenever I do find someone else’s mistake, even if they only happen to be anonymous ones found on cereal boxes or pill prescriptions. But oh, if I were to find a mistake on something I can identify the mistakee with, like on a condolence card, say, then, without any doubt in my former military mind, whoever that mistaken mistakee is, he…sigh…or she…will surely hear from a surly me about it. The pure joy and bliss I feel when finding someone else’s mistake must certainly mean that my endless pursuit to help others less fortunate than me—i.e., (or is it e.g.?) losers—achieve perfection are ordained by God, Himself… Damn it! I did it again! Strike that useless and redundant goddamn Himself, regardless of how High and Mighty It might be, and just leave it at plain and simple God!) weighted—and I imagine (and by imagine, here, strangely enough, I don’t mean imagine at all but instead I mean “I believe,” even though all the while I am talking about a make believe, imaginary person (English is sooo confusing)) that America’s average weight must all ready start out much heavier than most countries’ above-average weights do, especially all those rice-eatin’ Asian ones that have not yet been attacked by us. And by us I mean McDonalds, which is, of course, the same thing as saying America. So, for all of my foreign readers, that means that even the average, or middle, take your pick, American weight is really frikkin unaveragely high by your standards, I imagine (And yes, by imagine I once again mean “I really believe it to be so.”).—she.) says “he?” Don’t we understand who the “he” is that she is referring to? Does she really also need to include the “himself?” Are we really that confused (to put it politely) as readers? It’s not as if there are an overwhelming amount of potential antecedents in this blather to choose from to begin with. By my count there is only YOU (and I sincerely do thank you for being here, BTW (Don’t you even dare ask what BTW means.)), an occasional WE, our one or two of three regular readers who I refer to as my IMAGINARY SHE (She, at least in my mind. Like I said, you have the freedom to chose any gender or trans-gender or sex or trans-sex (And just what the heck is the difference anyway between gender and sex?) or whatever or whomever you choose to use in your own imagination.), and ME, AKA KURT, AKA BRINDLEY, AKA KURT BRINDLEY. That’s it! …Sheesh! Keep it simple lady, will ya. Why make things more difficult than they have to be? Right?), isn’t one of them.”
Well…in my defense, I did all ready say that I do I only like winners, didn’t I?
And right now, the outlook for America is a little iffy, at best.
So, maybe deep down I do mean to say they instead of we.
And if I did mean to say it deep down, would you like to know why I meant to say it?
That’s right, you got it.
Because I am American and as an American, I love to win.
Nothing wrong with that.
Winning, that is.
But depending on how things turn out, there just may be end up being something wrong with America; specifically, that it is no longer a winner, or even considered a winner, which may make it hard for us winners to continue to align ourselves with it.
But as far as winning in general is concerned, I’m all for it.
If you ask me, and even if you don’t I’m gonna tell you anyway…
‘Cause I am certainly here to tell ya…
That second place blows!
To me, if you come in second place then you ain’t nothing but a First Place Loser!
You can take all of your Second Place Trophies, and your Silver Medals, and any other award that is not plated in anything but pure, honest to goodness—because being first and being a winner feels so good and honest—Gold and shove them all up your lame, loser-of-a-logistical-shoot-for-shooting-waste and keep them there!
And right along with them, you can also shove right up in your lame, loser-of-a-logistical-shoot-for-shooting-waste-and-other-matters-and-by-other-matters-I-mean-BS, all of the loser enablers who, because they are such losers themselves, want to convince everyone, especially our youth, that it’s okay to come in second place (and by coming in second place you now know I really mean losing), and that it’s okay that not everyone can be a winner so don’t worry if you aren’t one either, okay. Because everything is just A-OK!, okay?
Ugh!
No! It’s not okay!
It’s okay to want to win.
And it’s okay to know that everyone cannot win at everything.
Those are okay things to know.
But it is not okay to think it’s okay to accept losing just because everyone cannot possibly win at everything.
Okay?
You know what?
Show me a good loser and I’ll show you…
A LOSER!
So, while you are shoving all of that other loser stuff up your lame, loser-of-a-logistical-shoot-for-shooting-waste-and-other-matters-and-by-other-matters-I-mean-BS, make sure you especially shove up there, and shove them especially high and especially hard up there, all of those god damn demoralizing and anti-American “Thank you for Participating Even Though You Lost” trophies that are so ubiquitously and harmfully handed out to every kid, and his brother, and his sister, and uncle’s cousin to boot, who we parents who only want to see that little sparkle in our eye just have fun and just be happy no matter what just so we slap them with each and every over-sized sporting and scouting uniform there is to slap on that little sparkle in that blurry eye of ours.
Big sigh…
God I hate to lose.
And I especially hate it when my sports teams lose.
If you have read my blog’s About page, you may remember that, since I am from the Cleveland, Ohio area, being a sports fan has always been very, very frustrating for me all throughout my entire, and by entire I mean from the very second I was born until now. And we can keep repeating that “now” from now until the day that a professional Cleveland sports team finally, and I mean FINALLY, wins the title of champion, which is an even better way of saying winner, in their respective sport.
Yup. I’m a frustrated sports fan, that I am.
And, unfortunately for me and all of the other nutjobs like me who refuse to realign themselves with any professional sports teams (teams that more than likely have won at least one championship in my lifetime) other than a Cleveland professional sports team (You might just be surprised just how many of us nutjobs there are like that.), we will probably remain frustrated for a long while to come.
And it is all because of all the losing that I had to suffer through the other day (Both my professional baseball team AND the TEAM USA women’s soccer team lost yesterday. Usually I could really care less about either one of them because I am not all that much into baseball, but Cleveland happened to be playing Baltimore yesterday and ever since Baltimore stole the professional football (Unlike baseball, I really do like watching football, even if it is not post-season play.) team from Cleveland, I despise all things that relate to Baltimore as far as sports are concerned. In fact, I even refer to the fans who root for Baltimore teams, regardless of where they are from (Just ask my buddy not-from-Baltimore-but-one-of-the-biggest -Baltimorons-there-is-Bob.) as Baltimorons, that’s how much I despise Baltimore sports teams. So, that’s why I was especially interested in the outcome of yesterday’s baseball game. And that is why it hurt so much when I found out via tweet from another “friend,” who is from the loser Detroit area and who is a fan of loser Detroit teams but at least he hasn’t yet sold out on them to become a Baltimoron as far as I know but regardless of what team he is backing I am quite certain he enjoyed telling me, that Cleveland had lost to the Baltimorons. And as for women’s soccer, I apologize women, but, overall, I am a nominal men’s sports fan at best so you can probably imagine how I feel about any sport that has the classifier of women in front of it. Nope. Doesn’t have much of a chance with me. (Nothing against Title 9, but it just doesn’t quite do it for me like a sexy Title 10 or Title 50 does. And it’s not that Title 9 reminds of all those damn Participation Trophies, or anything like that. No, it’s not at all like it’s a let’s-Divide-and-Conquer-our-limited-and-dwindlingrightbeforeoureyes-tax-dollars-so-that-everyone-can-play-but-we-all-end-up-losing-instead kinda thing. No, it’s not like that one bit, either. Nope, nothing wrong with Title 9 by me, that’s for sure…but I may have overheard some other men complain about it once or twice at the local sports bar. Maybe.) Unless, of course, they are a women’s sport team that represents America and especially if they are a women’s sports team that is going for the ultimate win in the sport they are playing, ala the other day when TEAM USA women’s soccer team was competing again TEAM JAPAN (Their women’s team, as well, I suppose, but I cannot confirm but I didn’t even watch the game.) (And I apologize, Japan, if that is not how you refer to your team, but that’s how we Americans do it over here.) to become the World Cup Champions (Wow! Is there any better way to say winner than that?), then, and possibly only then, will I be really and truly interested in women’s sports. And of course, with all of my interest highly engaged in the hopes that both of my teams would win the other day, they both ultimately, and without a doubt, lost. Frikkin’ losers!) that brings us both here, bathing uncomfortably together in this overflowing rabid froth of a blog post of mine.
Big sigh…
In Defense of the American Way of Life
I spent twenty years and four days as an enlisted swine sailor in the navy. That’s twenty years and four days of living on the government dole. If you think about it, that’s exactly what happens after someone joins the United States military, they get to live on the dole.
To get on the dole, however, I did have to promise my government that I would give it my life for it to use of and/or dispose of as it required or so desired. But fortunately for me, a good chunk of my service was during the happy-go-lucky Clinton years so I never really had to worry much about that unwritten but very much binding “dying in defense of freedom” clause in my contract.
For most of that twenty years and four days I was just like every other American rat who had to get up every morning to compete against all the others in the race.
Except that I had to wear a goofy-looking racing uniform while doing so.
Seriously, ever see those horrific bell bottoms on the old dungaree uniforms that we sailors used to have to wear? And those cursed “Cracker Jack” sailor suits weren’t much better either, let me tell ya.
Sheesh…the fact that we were willing to die for our country was never so impressive to me as was the fact that so many of us were willing to wear those embarrassing uniforms while doing so.
But just like so many other unavoidable indignities one must suffer throughout one’s life, one learns to accept it, or at least try to numb oneself somehow from the sting of it, and move on.
It sure was hard for me to accept the indignity of those ridiculous uniforms though, that’s for sure.
You know what? I bet I can guess what some of you are thinking right now.
I bet some of you are thinking: “True Americans are fighting and dying in defense of our country right now and this bozo is making fun of the uniform they so proudly wear.”
Listen, if that’s what you are thinking, and I am pretty sure some of you are, and it hurts your feelings, I apologize.
It was not my intent to cause pain to your sensitivities.
However…
Aren’t those True Americans who are fighting and dying in defense of our country right now doing so so that I could do exactly just that?
Well, perhaps they are not fighting and dying specifically so that I can cause pain to your sensitivities, but I certainly believe they are doing so to provide me the protection and guarantee and freedom to say whatever it is I feel I need or want to say as I strive to live and abide by the American Way of Life, which, in my view, happens to encompass MY pursuit of Happiness.
I do sincerely believe that and I am sincerely very thankful for their sacrifice.
And I pray that there will always be those who will willingly and courageously volunteer to fight, and even perhaps, sadly, sacrifice their own life, just so I can continue on with my own selfish and never-ending-till-I-die pursuit of Happiness.
Writing and saying what’s on my mind makes me Happy, that’s why I pursue it the way I do.
But I suppose that what I write or say doesn’t always make you Happy.
Sometimes, like right now, maybe, I say things with a specific intent in mind, which is, regardless of what I say, for me to always end up sounding like I am funny and smart. But instead of me ending up sounding funny and/or smart, the actual impact of what I say usually ends up with me sounding like the misinformed dork that I really am.
And even worse than me just ending up harmlessly sounding like the misinformed dork that I really am, I suspect that far too often the impact of what I say ends up so far off the mark from my intent that I unintentionally end up sounding like some offensive and inappropriate jackass.
When that happens, what I say just might end up hurting someone.
I hope that what I have to say doesn’t unintentionally hurt too often.
But then again, sometimes that may just be my intention.
That is, in addition to always trying to make myself sound funny and smart, sometimes my intent also might be to intentionally sound like some offensive and inappropriate jackass.
That’s because sometimes it takes a real jackass with enough oomph in his hindquarters to kick hard enough to make a point truly stick.
And unfortunately, whenever we do get stuck with a point, it tends to hurt for a bit.
Just to be clear, though, I cannot ever imagine a scenario where my intent would be for me to end up sounding like the misinformed dork that I really am.
That happens far too often enough without it ever being my intention.
But, that’s not really my problem, is it?
I really have no way of determining how what I say ends up impacting you.
For that I assume no responsibility or blame.
I just write the crap.
How it ends up sounding in your head after your brain interprets it is all on you.
I hope the intent of my words always matches the impact they have on your brain.
But I cannot guarantee they will.
And when they don’t, and especially if it causes pain to your sensitivities and causes you to think what an offensive and inappropriate jackass I am, please remember one thing.
And I say this understanding that I may end up sounding both like an uninformed dork and some offensive and inappropriate jackass…
Please remember that this blog was created and is maintained by me primarily as a resource for MY Happiness, not necessarily yours.
And like “True Americans” will sometimes say in defense of their American Way of Life, I say in defense of my blog:
“If you don’t like it, you can leave it.”
But really, I hope you don’t leave if I become too offensive and inappropriate for you.
And I hope you don’t leave if you become too offensive and inappropriate for me.
I like having you here to talk to.
Having you here, regardless of where you are from, or what your “Way of Life” or “way of life” or “WAYS OF LIFE” might be, provides me with much of the Happiness I so fervently pursue.
Besides, if you think what I DO or WILL say is offensive and inappropriate, just imagine some of the things that go through this troubled mind of mine that I DON’T or WON’T say.
I shudder to think.
Thank god for the delete button that’s all I gotta say, because so many of those offensive and inappropriate bastards of thought that float around in my mind often get just this close (use your imagination here to visualize me holding my hand in front of your face and pinching my pointer finger and thumb together so tightly that my hand shakes from it as I illustrate exactly what I mean by “just this close”) to being shouted out loud at the top of my scarred and deteriorating lungs.
And by just this close to being shouted out loud at the top of my scarred and deteriorating lungs I mean that sometimes this irrational world that we are living in drives me so bonkers that I can barely refrain myself from publishing those offensive and inappropriate bastards of thought that are floating around in this troubled mind of mine here on my blog and then tweeting and bleating and blasting them out to the twitterverse and then linking and posting and liking them like a mad crazy fool to Facebook and then finding other ways—Ah hell yeah!…google+—to shove them into your self-righteously offended and offensive face but, just because those thoughts barely strayed over that very thin and swaying line in my mind which I consider to be the boundary for good taste, I refrain myself and say nothing about them at all.
You have absolutely no idea what you are missing out on.
But enough of all that patriotic nonsense.
Back to my “on the government dole” point.
It always struck me as completely ironic (and if I think about it too hard it verges on the sardonically so) how so many Americans join the military to defend the American “Way of Life,” and, as a reward for their patriotism and service, they are provided for by the American government and funded by the American tax payer with a “way of life” that is so completely different and diametrically opposed to the “Way of Life” they gave up to defend.
Once someone joins the military, their new “way of life” becomes part of one of the most successfully socialist ways of life that has ever existed on this irrational planet of ours.
Now, the way I see it, the American “Way of Life” encompasses much and means different things to different folks, but I think all Americans can agree that this “Way of Life” certainly encompasses that democratic republic mashup system of government that so many Americans do not understand yet so many righteously trumpet, as well as a pretty hardcore capitalistic economic system, that, again, so many Americans do not really understand, but most are certainly beholden to.
Nothing wrong with that at all.
I’m all for the American Way of Life.
Hope you are all for it too, especially if you consider yourself an American.
And if you consider yourself a “True American,” well…
Well…I prefer to not even consider what the “True Americans” are all for in this, or any, regard, to be honest with you.
Besides, they will certainly tell us what they are all for anyway without the least bit of consideration at all.
But sometimes, especially when I really think hard about it, it makes me SMH in amazement that those who will so willingly sacrifice their life in defense of the American “Way of Life” have to live their “way of life” in a such heavily, if not completely, subsidized, socialistic, anti-American “Way of Life” manner. (BTW, for all you dinosaurs out there, SMH = shake my head. You can figure out the BTW for yourself.)
These potential military heroes are provided for with a completely free and well-maintained “gated” community if they live on base. If they choose to or are required to live off base, then their housing costs are subsidized. Their medical costs are completely paid for if they are seen by an on-base medical facility and, again, these costs are heavily subsidized if they are seen by an off-base medical facility.
And similar to the way of life in most anti-American “Way of Life,” socialist societies, the “way of life” in the American military includes serious restrictions on its service members’ freedom of expression and speech, restrictions that Americans who have never served in the military could never understand or imagine as they Happily and freely enjoy their own unique, and, quite honestly, sometimes a little weird and occasionally even a little creepy, American Way of Life.
I have several more “Way of Life” versus “way of life” examples, but I think you get the point:
A socialist “way of life” for those who volunteer to defend the Democratic Republic and Hardcore Capitalistic American “Way of Life.”
Again, nothing wrong with that.
Just a little ironic, wouldn’t you agree?
Besides, I’m all for providing anyone who willingly and courageously volunteers to defend the American Way of Life, regardless of how one defines it, with a decent and honorable way of life, American, socialistic, or otherwise.
America better provide their courageous volunteers and potential heroes with at least that because it sure as hell pays them like crap.
Believe me, after spending twenty years and four days as an enlisted swine sailor, I know exactly how crappy American service members are paid.
*
As I think and I write about all of this BS, all of the this Way of Life BS and all of the that way of life BS, and all of the goofy-looking uniform BS, and all of my pretentious and pedantic intent versus impact BS, I am being completely overwhelmed and thoroughly embarrassed by the ridiculous politics and even more ridiculous politicians behind the budget crisis that seemingly has the potential to rip the American Way of Life, regardless of how one defines it, to shreds.
That, to me, is wholly indefensible.
Dayglo Eyes and a Uniform Surprise
To celebrate the one-year anniversary of my bone marrow transplant yesterday, the wife and I partied down with my ophthalmologist for my quarterly eye exam. Okay, an eye exam is not much of a party, but since the results were good—my eyeballs are GVHD and infection free—I’ll take the eye exam over a party-hardy party any day.
While the results of the exam were good, it didn’t come without its hassles. The worst part about it, after the hour-and-a-half wait to see the doctor, that is (What is it about doctors that they think they can keep us waiting so long? Don’t they realize that—ah…don’t even get me started about doctor etiquette. We’ll save that rant for another day.), was having my pupils dilated so the doc could check for CMV and other infections and then having them numbed and stained yellow so she could perform a Glaucoma Test.
In addition to being blinded by all of the light my dilated pupils were sucking in, I had yellow fluorescent DayGlo-looking crap leaking out of my eyes all day long. I looked like some squinty, jaundiced-eyed mutant. In fact, couple my yellow fluorescent eyes with my big ol’ pumpkin head and I looked like I could have starred in one of Maurice Sendak’s books.
Speaking of DayGlo, I’m reminded of a time back in my navy days when I was deployed on some ship, I forget which one, and we were manning the rails getting ready to pull into some port, I forget where. Everyone was wearing their summer white uniforms for the occasion.
While everyone was wearing their summer white uniforms, not everyone was manning the rails. Many sailors were still responsible for making sure the ship functioned properly, to include the boatswain’s mates and other “deck apes,” as sailors responsible for the care and maintenance of the ship and other real navy stuff that I don’t really have a clue about are affectionately called.
While most of the crew stood around bored, doing nothing except standing and anxiously waiting to get to the pier so the liberty call fun could begin, the deck apes were preparing mooring lines and anchor chains and doing other dirty and greasy tasks that basically destroyed their lily-white uniforms. Too bad for them.
We have a saying in the navy: “Choose your rate, choose your fate.” They’re the ones who wanted to be a boatswain’s mate, ergo, they’re the ones who get the nasty jobs and uniforms that go with it.
It was an early morning port of call and, as there wasn’t much light to see by, some genius came up with the bright (pun intended) idea to have all the deck apes and other stuckies responsible for getting the ship tied safely to pier carry fluorescent yellow glow sticks in their shirt pockets so they could be seen more easily during the working party evolutions.
I think you can see where this is going.
By the time the ship finally got tied up and all those crazy deck apes got finished heaving and ho-ing and to-ing and fro-ing, most of the glow sticks that were being carried around in their pockets had broken and had leaked everywhere. By everywhere, I’m not just talking about all over the deck apes’ grease-and-dirt-covered summer white uniforms, I’m talking everywhere like all over the deck, all over the superstructure, all over the ropes that extended out to the pier, all over just about everything.
When that ship pulled alongside the pier, she glowed like a fluorescent yellow floating lantern. Too bad we all didn’t have some of the yellow glaucoma testing goop to put in our eyes. Just imagine how that would have looked to all the locals to see a fluorescent glowing warship pull in with the entire crew standing around with mad glowing eyes.
Fluorescent glowing warships and sailors with mad glowing eyes. How about that for a new national defense strategy?
Caffeine Therapy – Update #2

The tug of war between my leukemia oncologist and my Graft Versus Host Disease oncologist continues. As a reminder, when I met with my attending oncologist on March 24 he kind of got a little excited when he saw how high my liver counts were, since high liver counts are an indication that GVHD is flaring up in the liver. He immediately put a call in to my GVHD oncologist to see if he could get the specialist’s concurrence to either put me on an additional treatment or if he could raise the dosage of my current steroid treatment. The GVHD oncologist has the final say on all things GVHD as they relate to me and he wasn’t too concerned with the high counts, but he did want to see me in a week to see if the counts are trending up.
The wife and I met with the specialist on Friday, April 1, 2011, and I must say, it was one of the most informative consultations we have had during my entire cancer experience. A lot of information, both good and not so good, was passed.
First, the good news:
The best thing about the appointment was that we learned that my liver counts went back down.
From the beginning of my care with the GVHD specialist, which began the first week of November 2010, he has been consistent in focusing on the GVHD in my lungs and less so with the GVHD anywhere else. In fact, he said if it weren’t for the GVHD in my lungs, there would be no reason for me to even be seeing him. But he did say that had my liver counts continued to rise he would have taken pause to perhaps consider additional treatment for liver GVHD.
But, as it is, the counts went back down so all’s good for now. As a comparative, here are the results of my last two blood tests for my liver: (Read: Component, Low Range, High Range, Range Units, March 24 Lab Results, April 1 Lab Results):
DIRECT BILIRUBIN, 0.0, 0.4, mg/dl, 0.3, 0.3
ALKALINE PHOSPHATASE, 30, 120, U/L, 173, 164
ASPARTATE AMINO TRAN, 0, 37, U/L, 100, 70
ALANINE AMINO TRANS, 0, 40, U/L, 263, 184
The doc me that because of all the medication I am on and because my body will be fighting with my new marrow for the rest of my life, I can expect that I will always have some form of GVHD (in addition to my lung GVHD which is incurable and irreversible), be it skin GVHD, liver GVHD, eye GVHD, or others, and that my counts will always fluctuate up and down. According to the specialist, when it comes to reacting to blood counts, the key is looking for trends over time.
When the wife asked him why my attending oncologist wanted to immediately put me on additional treatment of either Cyclosporin or Tacrolimus because of the high liver counts and the GVHD flare ups in my eyes and on my skin, he scoffed and replied that is because my attending oncologist is a leukemia oncologist, implying that he, as both a leukemia oncologist and a GVHD specialist had a deeper understanding of how to manage my treatment. Of course, that is what one would hope from a specialist, but it is funny to see how competitive, and sometimes snarky and rude to each other, these Johns Hopkins doctors can be.
He went on to say that there was no way he would want to put me on either one of the drugs that my attending oncologist recommended because they are both so highly toxic that they would probably end up doing more damage to me than repair. He feels that I am already having to deal with enough toxicity from my current treatment plan.
Which brings us to more good news: We decided to lower my daily Prednisone dosage from 60 to 50 milligrams per day.
If you have never taken predinisone before, lowering the dosage by 10 mgs might not seem like so much; but in regards to this drug, 10 mgs is a lot. Lowering the dosage now is somewhat ironic seeing that a month ago, I was feeling so crappy that the wife and I were actually lobbying to raise the dosage in the hopes that it would get me back under control. Not much has changed in regards to how crappy I feel, but the specialist has made his point to me that this is just how my life is going to be from now on and it is better to get used to it now instead of potentially making things even worse down the road by adding even more toxic medicine into my treatment. I asked the specialist why not go ahead and drop me down to 40 mg, since he had always dropped me down 20 mg a pop until I got down to 60 mg. But he was concerned that dropping it by 20 mg would be too drastic and might send me back into the acute stage of my GVHD.
So, 50 mg it is.
I started with the 50 mg dosage of prednisone on Saturday, April 2, 2011. By Sunday afternoon, because I was experiencing achy joints and sore muscles, I began suspecting the onset of withdrawal symptoms from the lowered dosage. However, compared to the extreme withdrawals I went through after the first phase of my treatment back in February 2010 when the geniuses stopped me cold turkey after taking 180 mg of prednisone for two months, what I was experiencing this time was nothing. And as of now, noon Monday, April 4, I don’t notice any withdrawal symptoms at all.
My hope is that the lower dosage will have more of an effect of lessening the miserable side effects and less of an effect of increasing the symptoms that I’m taking it for. That is a confusing way of saying that I hope that the lesser dosage will improve my mental state, reduce the size of my big head, improve my vision, and lower my risks of diabetes, among all the other side effects, and, I hope that it doesn’t exacerbate, or worsen, my GVHD and my neuropathy.
Only time will tell.
The final piece of good news is: The specialist has no problems at all with me adding caffeine to my diet.
This is about the only area where both my attending oncologist and the specialist are in agreement. They both think that caffeinated coffee poses minimal risk to my liver and agree that if I feel that it is helping me mentally, then I should drink away. And believe me, I shall thank you very much.
I have noticed that, as predicted, it seems that my body has gotten used to the caffeine and I don’t seem to be responding as positively to it as I was when I first started drinking caffeinated coffee again. But regardless, whether or not it is helping to regulate the effects the prednisone has on my mental condition, I like drinking coffee so that in and of itself is enough for me.
Now, for some of the not quite as good news.
My days of flying on airplanes are pretty much over. The specialist didn’t say that I couldn’t fly, but he did say that flying, at a minimum, would be a stressful, uncomfortable endeavor and at a maximum, could be deadly.
Because of the condition of my lungs and of the unpredictable air pressure in airplanes, I will always need to bring a portable bottle of oxygen with me whenever I fly. He said long flights, like a fourteen-plus-hour flight to Japan for instance, would be very hard on me and I would really need to carefully consider the risks versus the rewards before attempting such a flight. I also need to consider where I am flying to, even on shorter flights. He said he could pretty much guarantee that I would end up in the hospital if I tried to flight to a high altitude place like Denver.
Plus, because I cannot get my vaccines as long as I am on prednisone, which will probably be for forever, I should not fly to any country where there is risk of exposure to polio or tuberculosis or any of the other diseases that we are vaccinated for.
More irony: My daughter just landed a sweet gig as a flight attendant for Virgin America Airlines. One of her perks is that her parents, c’est moi, can fly for free to just about anywhere in North America.
Ha ha ha isn’t that just so funny…
Yeah it is.
Another bummer thing I learned/was reminded of was that I need to continue to stay away from dirt. Again, because the prednisone degrades my immune system so much I really have to be careful about catching cooties. So, essentially, there will be no gardening or yard work for me…in theory anyway…or doing anything else where there is a risk I might breath in some fungal or other kind of infectious nastiness.
I guess the risk of infection continues to be my biggest immediate threat, and will continue to be so until the deterioration of my lungs gets to the point where lack of oxygen becomes critical. Who knows when that will happen.
All in all it was a very informative appointment, one that helped to clarify the direction that I’m heading. Not all of the information was what I wanted to hear, but at least it all was as definitive as any information that I have received since the beginning of all this cancer madness. I guess that is about all I can hope for: clarity and definitiveness of purpose.
Other than a follow up with my eye doctor on April 7, the next big event is my trip to the National Institute of Health in Bethesda, Maryland. The wife and I will be staying at a hotel for the week while I at poked and prodded and retested as part of my participation in a study to try out a new GVHD drug and a general study concerning GVHD in general. The wife and I are really looking forward to it. Hopefully the new drug will slow down my lung deterioration better than the prednisone is doing.
Fingers crossed.
Caffeine Therapy – Update #1
So…I may have been talking tongue in cheek for much of my Caffeine Therapy article, but I was serious as a heart attack, and we all know how serious those Widow Makers are, when talking about the positive impact that caffeine has had on my mental state of mind. Before I started drinking coffee I never knew where I was going to be mood-wise. Some days I would wake up Dr. Jekyll, some days Mr. Hyde. It was very stressful. After I started drinking coffee again, or, more specifically, after I added caffeine to my diet again, life was much more normal, predictable, and pleasant for me…and the rest of the family. While I still get stressed out and tense relatively easily, even while caffeinated up, it isn’t nearly has bad as it would get while I was caffeine-free.
Consequently, when I visited the doctor for a checkup from the neck up…and down…this past Thursday, I was looking forward to finding out how adding caffeine to my diet has impacted my liver, since that is where it’s metabolized.
Well, the lab results showed that my liver component counts were pretty high. Here are the numbers (Read: Component, Low Range, High Range, Range Units, My Lab Results):
DIRECT BILIRUBIN, 0.0, 0.4, mg/dl, 0.3
ALKALINE PHOSPHATASE, 30, 120, U/L, 173
ASPARTATE AMINO TRAN, 0, 37, U/L, 100
ALANINE AMINO TRANS, 0, 40, U/L, 263
Now, I have no idea what all of these different components are, but I do know the docs look at them to determine how my liver is doing. I asked my oncologist if he thought I should stop drinking coffee because the counts are so high and he said no. He wasn’t worried about the impact of caffeine on the liver. In fact, he agreed with my assessment that it is probably the caffeine that is positively stimulating me mentally while suppressing the negative psychological impact of all the other drugs and stress from my inflictions.
He was, however, worried that the high counts indicated that Graft Versus Host Disease was flaring up in my liver. After examination, he also assessed that it was flaring up again in my skin and eyes. He wanted to take some “preemptive measures” (his words) by either raising my steroid dosage or by trying another drug called Cyclosporin. But the way things work with my care and treatment, it wasn’t his call. All decisions relating to my care that involve GVHD are made by a different oncologist, one who also is a nationally renowned GVHD specialist and he was not quite as concerned about the elevated numbers as the other oncologists on Team Kurt. In fact, the wife and I had lobbied the GVHD specialist to raise my steroid dosage the last time we saw him over a month ago. I could tell even then by the way that I had been feeling and how my skin had looked that the GVHD was flaring up. But the specialist’s primary concern is with the GVHD in my lungs and not so much with the GVHD anywhere else. According to him, the other areas are relatively minor concerns compared to the lungs and were no cause for alarm or any additional action. A month later he apparently still feels the same.
I’m guessing the GVHD doc wants me to focus on my upcoming week-long visit in April to the National Institute of Health where I will participate in a study to get FDA approval for a new Lung GVHD treatment.
Still, the other oncologist wants me and the wife back next Thursday so we all, to include the GVHD specialist, can get together and further discuss this GVHD flare up in the liver and elsewhere.
Until then.